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Clinical Pediatrics, Vol. 46, No. 4, 311-319 (2007)
DOI: 10.1177/0009922806293985

Parent Perspectives on Pain Management, Coping, and Family Functioning in Pediatric Sickle Cell Disease

Monica J. Mitchell, PhD

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, Monica.Mitchell{at}cchmc.org

Kathleen Lemanek, PhD

Columbus Children's Hospital, Columbus

Tonya M. Palermo, PhD

Rainbow Babies and Children's Hospitals, Case Western Reserve University, Cleveland, Ohio

Lori E. Crosby, PsyD

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati

Alisha Nichols, BA

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati

Scott W. Powers, PhD

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati

Pediatric sickle cell disease is a chronic illness for which recurrent pain is a ubiquitous experience. This study used quantitative and qualitative methods to examine relationships between patient and family coping and health care utilization in children with sickle cell disease and to assess parents' recommendations for ensuring patient and family-centered care. Participants were 53 parents of children aged 7 to 13 with sickle cell disease across three large urban children's hospitals. Data showed that positive patient coping was related to positive family functioning and lower health utilization. In addition, parents report the need for comprehensive health care approaches that meet the physical and psychologic needs of patients and families.

Key Words: pediatric sickle cell disease • chronic illness • health care utilization


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