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Clinical Pediatrics
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Transcultural Understanding of a Hereditary Disorder

Mucopolysaccharidosis VI in a Vietnamese Family

Lauren Handelman, BA

Departments of Child and Family Psychiatry and Cardiology, Royal Children's Hospital, Melbourne, Australia

Samuel Menahem, MD, BS, FRACP

Departments of Child and Family Psychiatry and Cardiology, Royal Children's Hospital, Melbourne, Australia

I. Maurice Eisenbruch, MD, DPM, FRANZCP

Departments of Child and Family Psychiatry and Cardiology, Royal Children's Hospital, Melbourne, Australia

A case study of a family referred for clarification of cultural issues illustrates how a transcultural psychiatric service developed in the pediatric hospital setting can be used to advantage. A Vietnamese family with an inherited disorder, Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome, MPS VI),1 resisted genetic counseling and contraception. Three out of their six children were affected, one with a fatal outcome. The transcultural consultation offered an understanding of their behavior and facilitated subsequent management.

Clinical Pediatrics, Vol. 28, No. 10, 470-473 (1989)
DOI: 10.1177/000992288902801009
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